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Exploring Difference or Just Watching the Experts at Work? Interrogating Patient and Public Involvement (PPI) in a Cancer Research Setting Using the Work of Jurgen Habermas

Bissell, Paul, Thompson, Jill and Gibson, Barry (2017) Exploring Difference or Just Watching the Experts at Work? Interrogating Patient and Public Involvement (PPI) in a Cancer Research Setting Using the Work of Jurgen Habermas. Sociology. ISSN 0038-0385 (In Press)

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Abstract

Patient and public involvement (PPI) has emerged as a key consideration for organisations delivering health research and has spawned a burgeoning literature in the health and social sciences. The literature makes clear that PPI in health research encompasses a heterogeneous set of practices with levels of participation and involvement ranging from relatively minimal contributions to research processes to actively driving the research agenda. In this paper, we draw on the work of Jurgen Habermas to explore the ways in which PPI was accomplished in a cancer research setting in England. Drawing on ethnographic data with PPI participants and professional researchers, we describe the ways in which the life-world experiences of PPI participants were shaped by the health research system. We argue that PPI in this setting is less about exploring differences with regard to a plurality of expertise and more about simply watching or supporting the professional researchers at work.

Item Type: Article
Uncontrolled Keywords: Patient and public involvement; Habermas; System and life-world; Cancer research network
Subjects: R Medicine > RC Internal medicine > RC0254 Neoplasms. Tumors. Oncology (including Cancer)
Schools: School of Human and Health Sciences
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Depositing User: Jonathan Cook
Date Deposited: 07 Dec 2017 09:23
Last Modified: 08 Dec 2017 08:04
URI: http://eprints.hud.ac.uk/id/eprint/34064

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