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A State of Flux: On Bleeding

Brigati, Roberto and Crocetti, Daniela (2016) A State of Flux: On Bleeding. Journal of Literary & Cultural Disability Studies, 10 (3). ISSN 1757-6458

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Abstract

There are few non-medical reflections on haemophilia and chronic bleeding disorders (CBDs), and what there is often turn out to be wrong, outdated, or fanciful. CBDs are often hidden experiences, aside from the lack of treatment in literature, academic or not. This article re-frames CBDs through a philosophical, yet subjective, treatment that seeks to describe it as a cluster of experiences that often step outside of the bounds of the medical definition. Why have CBDs been so elusive? Partly because of their multi-layered, temporally structured, socially organized ontology, which makes them hard to define, locate, and reduce to one clear-cut perspective. Are they in the genes, in actual bleedings, in secondary disabilities, in the social adjustments involved, in iatrogenic complications; or are they to be located in the joints, the liver, or other organs that may be affected as a consequence of
treatments? Do they affect individuals, families, genetic carriers, sexual partners, or even future generations? Drawing partly upon personal history, conversations, semi-structured
interviews, published biographical narrations, and the shared experience of patients’ groups, the article amends some misinterpretations and captures salient aspects of this illness experience.

Item Type: Article
Subjects: B Philosophy. Psychology. Religion > B Philosophy (General)
G Geography. Anthropology. Recreation > GN Anthropology
H Social Sciences > H Social Sciences (General)
H Social Sciences > HM Sociology
R Medicine > RA Public aspects of medicine
R Medicine > RC Internal medicine
R Medicine > RZ Other systems of medicine
Schools: School of Human and Health Sciences > Centre for Health and Social Care Research
School of Human and Health Sciences
Related URLs:
Depositing User: Daniela Crocetti
Date Deposited: 08 Nov 2016 13:08
Last Modified: 08 Nov 2016 13:08
URI: http://eprints.hud.ac.uk/id/eprint/29836

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