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Estimated prevalence of people with learning disabilities: template for general practice

Allgar, Victoria, Mir, Ghazala, Evans, Joyce, Marshall, Joyce, Cottrell, David, Heywood, Phil and Emerson, Eric (2008) Estimated prevalence of people with learning disabilities: template for general practice. British Journal of General Practice, 58 (551). pp. 423-428. ISSN 0960-1643

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    Abstract

    Background
    In 2001, a white paper set out a commitment to ensure
    that people with a learning disability receive equal access
    to health services, with an expectation that general
    practices would have identified all people with a learning
    disability registered with the practice by June 2004.
    Aim
    To outline the development of a template to create
    practice-based registers of people with learning
    disabilities in general practice.
    Design of study
    The study was prospective, employing a template to
    identify patients in general practice with a learning
    disability. The study used capture–recapture
    methodology to estimate the prevalence of learning
    disability in the population.
    Setting
    General practices in Leeds.
    Method
    A template was developed that uses Read code
    searches of practices’ electronic medical records,
    along with practice knowledge to identify patients who
    have a learning disability.
    Results
    The tool was piloted in 30 general practices in Leeds
    and validated against a city-wide database of people
    with learning disability. There was a wide variation
    between the practices in terms of how many people
    were identified, with the average being 0.4% of the
    practice population. Combined with validation from the
    city-wide database, this increased to 0.7%.
    Conclusion
    The template provides a valuable tool for general
    practices to begin developing a practice-based register
    of patients with a learning disability. This is particularly
    timely in view of the revised General Medical Services
    contract Quality and Outcomes Framework indicator,
    stimulating practices to produce a register of patients
    with learning disability. Use of a common definition for
    learning disability is needed to improve consistency in
    identification across practices.

    Item Type: Article
    Uncontrolled Keywords: general practice, learning disabilities, prevalence, register
    Subjects: R Medicine > RT Nursing
    R Medicine > R Medicine (General)
    H Social Sciences > HV Social pathology. Social and public welfare
    Schools: School of Human and Health Sciences
    Depositing User: Sara Taylor
    Date Deposited: 27 Jul 2010 11:30
    Last Modified: 30 Jun 2011 10:26
    URI: http://eprints.hud.ac.uk/id/eprint/8205

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