Computing and Library Services - delivering an inspiring information environment

Family carers' experiences of out-of-hours community palliative care: a qualitative study

King, Nigel, Bell, Dennise and Thomas, Keri (2004) Family carers' experiences of out-of-hours community palliative care: a qualitative study. International Journal of Palliative Nursing, 10 (2). pp. 76-83. ISSN 1357-6321

[img] PDF
Restricted to Registered users only

Download (112kB)


Carers’ feelings of uncertainty and anxiety can be particularly acute out-of-hours, when they may not have access to familiar sources of professional help and advice. The present study used qualitative semi-structured interviews to explore carers’ experiences of out-of-hours care and support services. Fifteen bereaved carers in the Calderdale and Kirklees area were interviewed, and the interview transcripts analysed thematically. In general, carers felt well supported out-of-hours, especially by the nursing services. They appreciated opportunities to develop some degree of personal relationship with those they saw out-of-hours. However, in some cases problems were apparent. These were associated with poor provision of information, inadequate communication with carers, difficulties in accessing night-sitter services, or the inflexibility of services. The findings underline the importance of primary care practitioners taking an anticipatory approach to community palliative care

Item Type: Article
Additional Information: © International Journal of Palliative Nursing, 2004,
Uncontrolled Keywords: Carers Out of hours Community Qualitative
Subjects: H Social Sciences > HN Social history and conditions. Social problems. Social reform
H Social Sciences > H Social Sciences (General)
R Medicine > RA Public aspects of medicine
Schools: School of Human and Health Sciences
School of Human and Health Sciences > Centre for Applied Psychological Research
Related URLs:

Barclay S, Rogers M, Todd C (1997) Communication
between GPs and cooperatives is poor for terminally
ill patients. BMJ 315: 1235–6
Barclay S, Todd C, McCabe J, Hunt T (1999)
Primary care group commissioning of services: the
differing priorities of general practitioners and district
nurses for palliative care services. Br J Gen
Pract 49: 181–6
Carers UK (2003) Policy Briefing: Census 2001 and
Carers – Results from around the UK. Carers UK,
Carr-Hill R (1992) The measurement of patient satisfaction.
J Public Health Med 14(3): 236–49
Chiverton E (1997) Social support within the context of life-threatening illnesses. Int J Palliat Nurs 3(2):
Crabtree BF, Miller WL (1999). Using codes and
code manuals: a template organizing style of interpretation.
In: Crabtree BF, Miller WL, eds. Doing
Qualitative Research. 2nd edn. Sage, Newbury
Park, California
Department of Health (1999) Caring About Carers:
A National Strategy for Carers. Department of
Health, London
Department of Health (2000) The NHS Cancer Plan
a Plan for Investment, a Plan for Reform.
Department of Health, London
Fitzpatrick R (1993) Scope and measurement of
patient satisfaction. In: Fitzpatrick R, Hopkins A,
eds. Measurement of Patients’ Satisfaction with
their Care. Royal College of Physicians, London
Grande GE, Todd CJ, Barclay S (1997) Support
needs in the last year of life: patient and carer
dilemmas. Palliat Med 11: 202–8
Henwood M (1998) Ignored and Invisible? Carers’
Experiences of the NHS. Carers National
Association, London
Herd EB (1990) Terminal care in a semi-rural area.
Br J Gen Pract 40: 248–51
King N (1998) Template analysis. In: Symon G,
Cassell C, eds. Qualitative Methods and Analysis
in Organizational Research. Sage, London: 118–34
King N, Thomas K, Bell D (2003) An out-of-hours
protocol for community palliative care: practitioners’
perspectives. Int J Palliat Nurs 9(7): 277–82
Lynn J, Scuster JL, Kabcenell A (2000) Medical reimbursement.
In: Lynn J, ed. Improving Care for the
End of Life. Oxford University Press, Oxford
Munday D, Dale J, Barnett M (2002) Out-of-hours
palliative care in the UK: perspectives from general
practice and specialist services. J R Soc Med 95(1):
Murphy E, Dingwal R, Greatbatch D, Parker S,
Watson P (1998) Qualitative research methods in
health technology assessment: A review of the literature.
Health Technol Assess 12: 16
NICE (2003) Draft guidelines for palliative and supportive
care. NICE, London
Payne S, Smith P, Dean S (1999) Identifying the concerns
of informal carers in palliative care. Palliat
Med 13: 37–44
Piercy J (2000) The plight of the informal carer. In:
Charlton R, ed. Primary Palliative Care. Radcliffe
Medical Press, Abingdon, Oxford
Ramirez A, Addington-Hall J, Richards M (1998)
ABC of palliative care: the carers. BMJ 316:
Rose KE (1999) A qualitative analysis of the information
needs of informal carers of terminally ill cancer
patients. J Clin Nurs 8(1): 81–8
Seamark D, Lawrence C, Gilbert J (1996)
Characteristics of referrals to an in-patient hospice
and a survey of general practitioners’ perceptions
of palliative care. J R Soc Med 89: 79
Shipman C, Addington-Hall J, Barclay S et al (2000)
Providing palliative care in primary care: how satisfied
are GPs and district nurses with current outof-
hours arrangements? Br J Gen Pract 50: 477–8
Simon C, Kendrick T (2001) Informal carers – the
role of general practitioners and district nurses. Br
J Gen Pract 51: 655–7
Simon C, Kumar S, Kendrick T (2002) Who cares for
the carers? The district nurse perspective. Fam
Pract 19(1): 29–35
Thomas K (2000) Out-of-hours palliative care: bridging
the gap. Eur J Palliat Care 7(1): 22–5
Thomas K (2001) Out-of-hours Palliative Care in the
Community: Continuing Care for the Dying at
Home. Macmillan Cancer Relief, London
Thomas K (2003a) Caring for the Dying at Home:
Companions on the Journey. Radcliffe Medical
Press, Abingdon, Oxfordshire
Thomas K (2003b) The Gold Standards Framework
in community palliative care. Eur J Palliat Care
10(3): 113–15
Twigg J, ed (1992) Carers: Research and Practice.
Her Majesty’s Stationery Office, London
Wilkinson S (2000) Fulfilling patients’ wishes: palliative
care at home. Int J Palliat Nurs 6(5): 212

Depositing User: Sara Taylor
Date Deposited: 23 Aug 2007
Last Modified: 04 Sep 2015 21:25


Downloads per month over past year

Repository Staff Only: item control page

View Item View Item

University of Huddersfield, Queensgate, Huddersfield, HD1 3DH Copyright and Disclaimer All rights reserved ©