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Family carers' experiences of out-of-hours community palliative care: a qualitative study

King, Nigel, Bell, Dennise and Thomas, Keri (2004) Family carers' experiences of out-of-hours community palliative care: a qualitative study. International Journal of Palliative Nursing, 10 (2). pp. 76-83. ISSN 1357-6321

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    Carers’ feelings of uncertainty and anxiety can be particularly acute out-of-hours, when they may not have access to familiar sources of professional help and advice. The present study used qualitative semi-structured interviews to explore carers’ experiences of out-of-hours care and support services. Fifteen bereaved carers in the Calderdale and Kirklees area were interviewed, and the interview transcripts analysed thematically. In general, carers felt well supported out-of-hours, especially by the nursing services. They appreciated opportunities to develop some degree of personal relationship with those they saw out-of-hours. However, in some cases problems were apparent. These were associated with poor provision of information, inadequate communication with carers, difficulties in accessing night-sitter services, or the inflexibility of services. The findings underline the importance of primary care practitioners taking an anticipatory approach to community palliative care

    Item Type: Article
    Additional Information: © International Journal of Palliative Nursing, 2004,
    Uncontrolled Keywords: Carers Out of hours Community Qualitative
    Subjects: H Social Sciences > HN Social history and conditions. Social problems. Social reform
    H Social Sciences > H Social Sciences (General)
    R Medicine > RA Public aspects of medicine
    Schools: School of Human and Health Sciences
    School of Human and Health Sciences > Centre for Applied Psychological Research
    Related URLs:

    Barclay S, Rogers M, Todd C (1997) Communication
    between GPs and cooperatives is poor for terminally
    ill patients. BMJ 315: 1235–6
    Barclay S, Todd C, McCabe J, Hunt T (1999)
    Primary care group commissioning of services: the
    differing priorities of general practitioners and district
    nurses for palliative care services. Br J Gen
    Pract 49: 181–6
    Carers UK (2003) Policy Briefing: Census 2001 and
    Carers – Results from around the UK. Carers UK,
    Carr-Hill R (1992) The measurement of patient satisfaction.
    J Public Health Med 14(3): 236–49
    Chiverton E (1997) Social support within the context of life-threatening illnesses. Int J Palliat Nurs 3(2):
    Crabtree BF, Miller WL (1999). Using codes and
    code manuals: a template organizing style of interpretation.
    In: Crabtree BF, Miller WL, eds. Doing
    Qualitative Research. 2nd edn. Sage, Newbury
    Park, California
    Department of Health (1999) Caring About Carers:
    A National Strategy for Carers. Department of
    Health, London
    Department of Health (2000) The NHS Cancer Plan
    a Plan for Investment, a Plan for Reform.
    Department of Health, London
    Fitzpatrick R (1993) Scope and measurement of
    patient satisfaction. In: Fitzpatrick R, Hopkins A,
    eds. Measurement of Patients’ Satisfaction with
    their Care. Royal College of Physicians, London
    Grande GE, Todd CJ, Barclay S (1997) Support
    needs in the last year of life: patient and carer
    dilemmas. Palliat Med 11: 202–8
    Henwood M (1998) Ignored and Invisible? Carers’
    Experiences of the NHS. Carers National
    Association, London
    Herd EB (1990) Terminal care in a semi-rural area.
    Br J Gen Pract 40: 248–51
    King N (1998) Template analysis. In: Symon G,
    Cassell C, eds. Qualitative Methods and Analysis
    in Organizational Research. Sage, London: 118–34
    King N, Thomas K, Bell D (2003) An out-of-hours
    protocol for community palliative care: practitioners’
    perspectives. Int J Palliat Nurs 9(7): 277–82
    Lynn J, Scuster JL, Kabcenell A (2000) Medical reimbursement.
    In: Lynn J, ed. Improving Care for the
    End of Life. Oxford University Press, Oxford
    Munday D, Dale J, Barnett M (2002) Out-of-hours
    palliative care in the UK: perspectives from general
    practice and specialist services. J R Soc Med 95(1):
    Murphy E, Dingwal R, Greatbatch D, Parker S,
    Watson P (1998) Qualitative research methods in
    health technology assessment: A review of the literature.
    Health Technol Assess 12: 16
    NICE (2003) Draft guidelines for palliative and supportive
    care. NICE, London
    Payne S, Smith P, Dean S (1999) Identifying the concerns
    of informal carers in palliative care. Palliat
    Med 13: 37–44
    Piercy J (2000) The plight of the informal carer. In:
    Charlton R, ed. Primary Palliative Care. Radcliffe
    Medical Press, Abingdon, Oxford
    Ramirez A, Addington-Hall J, Richards M (1998)
    ABC of palliative care: the carers. BMJ 316:
    Rose KE (1999) A qualitative analysis of the information
    needs of informal carers of terminally ill cancer
    patients. J Clin Nurs 8(1): 81–8
    Seamark D, Lawrence C, Gilbert J (1996)
    Characteristics of referrals to an in-patient hospice
    and a survey of general practitioners’ perceptions
    of palliative care. J R Soc Med 89: 79
    Shipman C, Addington-Hall J, Barclay S et al (2000)
    Providing palliative care in primary care: how satisfied
    are GPs and district nurses with current outof-
    hours arrangements? Br J Gen Pract 50: 477–8
    Simon C, Kendrick T (2001) Informal carers – the
    role of general practitioners and district nurses. Br
    J Gen Pract 51: 655–7
    Simon C, Kumar S, Kendrick T (2002) Who cares for
    the carers? The district nurse perspective. Fam
    Pract 19(1): 29–35
    Thomas K (2000) Out-of-hours palliative care: bridging
    the gap. Eur J Palliat Care 7(1): 22–5
    Thomas K (2001) Out-of-hours Palliative Care in the
    Community: Continuing Care for the Dying at
    Home. Macmillan Cancer Relief, London
    Thomas K (2003a) Caring for the Dying at Home:
    Companions on the Journey. Radcliffe Medical
    Press, Abingdon, Oxfordshire
    Thomas K (2003b) The Gold Standards Framework
    in community palliative care. Eur J Palliat Care
    10(3): 113–15
    Twigg J, ed (1992) Carers: Research and Practice.
    Her Majesty’s Stationery Office, London
    Wilkinson S (2000) Fulfilling patients’ wishes: palliative
    care at home. Int J Palliat Nurs 6(5): 212

    Depositing User: Sara Taylor
    Date Deposited: 23 Aug 2007
    Last Modified: 23 Jun 2015 10:56


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